Wednesday, I have high hopes

As I was ready to post the below I received a call from Dr. Robertson who is now the Dr. in charge of Terry's treatment.  He said they will have a short meeting today about what they have found BUT the entire team will meet Friday and have a discussion as to where to go with treatment.  He stated that as of now they are NOT thinking it is CIDP but more a muscle thing.  So once again it is a wait and see what is next.  Dr. Robertson was very nice but NOT on the level that Dr. Ferderer was on in terms of consumer comfort!  For sure he sounded very nice but he kind of was the typical doctor in terms of sounding like he was on the go and was very busy!  It sounds like I may not hear much before their Friday meeting.

Terry

As we get into day 40 of Terry's hospital/rehab stay I have hope that good things MAY begin to happen today.  Dr. Ferderer, who has called me most afternoons, said yesterday that he thought they would start treatment yesterday afternoon or this morning.  I am not sure IF they started as Terry said she had some procedure in the afternoon but it sounded like it was an EMG and not the start of treatment.  I THINK I have a capacity to absorb  what the medical field tosses around but these things like EMG, IVIG, HNIG and more challenge me for sure.  Dr. Ferderer said they needed a bit more information before starting but it certainly looks like they are headed towards treatment for CIDP.  I should know today.  Terry indicated this morning in a phone call that she is now on floor 6 instead of floor 5.  That means she is on the floor that is for neurology.  IF treatment is started today I do not know how many or how long a journey we are on.  As I did yesterday, I will add that Terry sounded good over the phone this morning.  As usual she said she was very very tired but she did say she got a good sleep last night.  IF I get more definitive news I will post more later.

Pretty bad but I started writing last night what is below.  Perhaps I am feeling sorry for myself but then I think of Terry and say "Carmen you are so pathetic!  Well I am using Terry's words as she reacted to me drilling a hole in the roof of the garage!!!

I admit it I am at a low point tonight.  I will post this tomorrow and this will have passed but for now I am kind of on a downer.  I know you do not need to know this and I should really sign off and go to bed but it is too early.
Here I am on Niles Ave in St. Paul.  Terry has been in the hospital for 39 days and counting.  Travis is off to work for the evening.  So I am here alone and just am kind of lost.  I thought maybe the Dr would call this afternoon as he said there was a good chance they would start treatment for Terry this evening.  AND maybe they did but I did not get a call.  I called Terry about 8:00 and she did not answer so I am hoping treatment started.  I do not know how long or how many treatment they are thinking about.  I am sure I will find out soon.  I just am a lonesome guy tonight.  I did get some things done today.  I dug up the two garden spots and they are kind of ready to plant.  We are supposed to get rain Wednesday.  The driver side rear tire on the pick up was way down again so I put air and drove to the tire store.  I just was not comfortable with what they were telling me so I drove to Costco and ordered a set of new tires.  The tires were put on 20 years ago.  I felt they had a lot of wear left but the sidewalls were beginning to show cracks and I felt they were not safe.  Now why did I want to put $$ into tires on a truck that I do not use much?  Well I guess I just got tired of the tires going flat as it sat!
So I am feeling kind of flat as well.  Alone and really I just do not do all that well when I am alone.  I tend to walk back and forth in the house while getting nothing done.  Well as they say this too shall pass and Terry will be well soon, I hope.
I purchased the tires at Costco and then stopped and got some things.  Now I am doing brats in the brat maker and then will just heat them up when I want one.  I have the last of them in so will sign off and then try to sleep when they are done.  It seems way too early but I have NO energy to do any work now.

I can not believe this picture as Janet is standing behind me and I am guessing I am maybe ready for a haircut.  To this day I GREALY dislike haircuts so maybe Janet is just tickling me.  

Terry sitting at a senate desk like the one she sat at for 6 years.  Maybe that was her disk, I do not remember.

Some of blacksmith Henry's iron work from some time ago

Farmer Liam with one of his goats.  

Terry encouraged us to stop at the Forman ND museum and it was fun.  As we entered the front door there in the glass case was my book!  We had a fun visit.

So here I am back to Wednesday morning and it is just 8:00 AM.  I have had my breakfast and am on my 3rd cup of POD coffee.  Breakfast consisted of a cut up brat in two large scrambled eggs and a piece of dry toast.  Travis worked last night and it sounded like he came. home about 4:30 or so.  He is now sleeping.  

I am going to be waiting by my phone this morning as I am hoping to get a call saying the team looked at the EMG, the spine fluid and more and are now ready to start therapy.  Dr. did say yesterday that the protein level in the fluid was elevated which points towards the path they think they will go.  It appears that it may be another day of wait and see and wait by the phone.  I promise myself that I will try to get somethings done as I have my phone VERY handy near me.  At times like this I am thankful we are in the time of cell phones and not the plugged in land line that was stationary in the kitchen or some other room.  I remember WAY back when cell phones were just coming into being popular and Gail and I said we were going to just stick with the wall phone in the kitchen as that would help us keep track of the boys!!!

I have thought that maybe I would get Terry's car in running order today.  I think it is just a matter of putting the battery in but of course one never knows.  I had a dream or maybe just a thought of hearing people who had cars sit for a long time and then finding mice nests etc under the hood.  An elderly man down the street had as his only car a 1955 Ford sedan.  He had metal work done on it as over the many many years it rusted etc.  Well he passed away and the car went to one of his grandsons.  They got the car started and backed it out of the garage only to see flames coming out from under the hood.  Poof and it was destroyed.  Granted the car had sat for some time but still I may check things out before starting the car as it has sat since October. 

Darn those new tires will not be here before maybe next week and this morning the tire is FLAT but I think I can put air in and drive where I need to drive, I THINK!

The coffee is finished, my blog is about over and I am kind of ready to face the world today.  Really I do think I need my FP sooner than later.